I was on CNN Health!

CNN Reporter Elizabeth Landau called me at work one day because she found me via this blog.  Boy, was I surprised.  The article is entitled, Move to merge Asperger’s, autism in diagnostic manual stirs debate.

Let me know what you think about this issue.

I recommend that you watch this.  Best Autism Video: autism reality by Alex Plank of WrongPlanet.net

“When you hear a sound, your brain responds.  When the child with autism hears a sound, their brain responds too, but a little bit later.  What we’re seeing is a…split-second delay in recognizing that sound,”  Tim Roberts says.

Ms. Chetry asks, “How does that play out in how children with autism learn and communicate?”

“What happens is that as speech becomes more complicated, we have more and more sounds building up, and these delays cascade on each other leading to a difficulty in perceiving or recognizing the word.”

Can you imagine how long it took me to transcribe the above sentences from the video?  I had to see, hear, understand, translate into a visual of the word in my head, type what I saw, while still hearing more, and more, and more! going in.

I was lost after three to five words each time I tried, so I played the video in a different window so I could just listen and type without seeing the heads moving, but the delay in my mind was just too much, and it all became garbled in my brain.  I didn’t understand the sentence and didn’t “see” the words in my head.  I had no clue what they were saying.  I was so quickly lost.

My typing speed is not the issue.  My preferred form of communication is email, and I write every day, so my typing speed is incredibly fast.  So, I tried another approach based on my experience.

One Source of Input

Only so much input at once, is my rule.  So, say the bare bones of what you have to say, then stop–unless you are communicating with facial expressions, tones of voice, and hand gestures.  Then you will have to state those unvoiced messages because I didn’t receive them.  They are visual distortion of the message.

This is why I tried transcribing without looking at the video to rid myself of the moving heads.  The moving distraction was enough that I lost understanding of the message very quickly.

The Next Try

Playing the video without watching while trying to type didn’t work either.  Without the visual, the delay wasn’t as slow, but I was quickly tripped up and way behind what was hearing.  It all turned into a mess in my head and my agitation increased in a millisecond.  I raced to the mouse to get to the video window so I could click “pause.”  I breathed out.  I had freaked out inside.

But, I have a Great Visual Memory

This time, I watched the video to understand a complete thought and paused the video.  Then I clicked to this window I am typing in and wrote the thought word for word without error.  I waited to let it integrate and to anticipate what they would say next, then I switched back to the video and repeated until the transcription was done.

I “saw” what they were saying.  I literally see the words in my head as they are talking.  The words have time to form into a visual then when I stop the recording, I see the whole sentences.  I worked at my usual fast typing speed because I was literally copying what I saw.

Advice for Teachers, Bosses, Parents, and Spouses

1. Public speakers use dramatic pauses to let a point “settle in.”  All people need pauses, not just the ASD people, so they can catch up with what is being said and integrate what they have heard.  Do the same for your loved one, pupil or employee with Asperger’s or autism.
2. One of my children summed it up best when this child said, “Okay, okay.  I get it, now stop talking.  You don’t have to keep explaining!  Stop talking!”  This child’s frustration level escalated rapidly if I didn’t “talk, stop, talk, stop,” so that day it resulted in a door slamming.  I understand the frustration completely, yet I forgot to start with a short summary then stop completely.
3. If you notice a person on the autism spectrum watching your lips when you are talking, it is a sign that you are talking too quickly and not pausing or not letting any silence hang.  Related article…
4. If you like to make a lot of facial expressions, body and hand movements, to make your point or “drive home” your point or “communicate what you are saying,”  don’t; it will muddle the message.
5. It is the easiest for me to understand speech in the morning, so my meetings and phone calls are generally in the morning.  In an afternoon meeting, I often have to get people to repeat points they are saying.  So, afternoons, I usually focus on a task with little environmental distraction.
6. Teachers, your autistic students may have more trouble writing in the afternoon because they are thinking of “what to say.”  Subjects such as math, graphic design, art, physical education, cooking, reading, or computer programming are relaxing in the afternoon.

Did You Notice how I Wrote This?

Some sentences, which make them more difficult to understand, have thoughts split.  Some sentences run on explaining point after point and linking thoughts thereby diluting the one necessary thought.  Some sentences are concise.  Choose the latter, then stop.  Believe me, it will be much appreciated.

“I was being metaphorical about the heart and you just got all confused and just couldn’t relate,” John smiled as he said it.  We were talking about Saturday night after we got home from an evening out.  I remember I had started explaining why the heart and mind act that way because of chemical processes that go on in the mind and body.

Then he started laughing so hard!  I wasn’t offended because he never laughs AT me, just with me.  But, I had no clue what was so funny.  He just reached over and cupped my cheek in his hand and kissed me.  He said, “Yup.  I’m Captain Kirk and you’re Mr. Spock,” still chuckling.

Then I continued, “Yes, I suppose I’m a combination of Mr. Spock and Data.”

“Who?”

“Data, from The Next Generation.”

He laughed again, “Sorry, love, I am not up on my sci-fi like you are.”  I realized what he was talking about and I thought, “OMG, am I the stereotype of a geek where from a lot of these Asperger’s online tests came from?”

I said, “You know, love, I’ve actually had a secret desire to go to a Star Trek convention and dress up and the whole bit, but there are too many people there.”

He started laughing even harder.  Again, he was NOT laughing at me.  It’s a common joke between us that I do NOT want to go to the Minnesota State Fair every year like he does with the kids because the sheer dizzying cacophony and visual flashes just kill me to the point that I have to leave, and NOW.  It’s an extremely serious issue for me, but we laugh about it to take the edge off and to show that he accepts me the way I am.  We laugh because he knows never to ask me to go to the State Fair or any other super-crowded venues.

He loves me the way I am and does NOT see me as flawed, nor do I.  We are the complete opposites, which is something we both have respect for because we think it is so cool that one can think or do in ways the other can’t.  We’re the perfect complement.  We even scored almost exactly the opposite on our Myers-Briggs tests, me, an INTJ, as you may have suspected if you are familiar with the test.

I like being logical.  It’s relaxing.  Yes, I sometimes often to do not know what’s “going on” with other people, but if I understood their drama, I’d be very upset all the time.  So, I have Asperger’s and I’m a happy camper being the logical, cool, calm island who people run to when they are emotionally distressed.

I give big hugs and I’m a great listener.

Oh, and about the heart, John was being romantic and saying sweet nothings about how his heart feels for me.  It was a little subtle for me, but I always understand and feel it wholeheartedly when he says, “I love you.”

Side thought:

Isn’t the stereotype of a geek, a man?  Not so, say I, because I personify geek.  Fortunately, “geek” is in style, so I am so de rigueur.  I am the brilliant, clueless epitome of cool.  Yes, I’m smart and logical, and my kids often say, “You’re going to wear that?”

Proud to be an Aspie

The Eight Asperger Advantages

by Kristina Elaine, reprinted from Alyson Bradley’s Aspergers Parallel Planet

There are aspects of Asperger Syndrome that you can use to your great advantage.

1. Focus

Your ability to focus on one objective over long periods of time without becoming distracted allows you to accomplish large and challenging tasks.

2. Unique Global Insights

Your ability to find novel connections among multi-disciplinary facts and ideas allows you to create new, coherent, and meaningful insight that others would not have reached without you.

3. Independent Thinking

Your willingness to consider unpopular or unusual possibilities generates new options and opportunities and can pave the way for others.

4. Internal Motivation

Rather than being swayed by social convention, other’s opinions, social pressure or fears, you can hold firm to your own purpose. Your unique ideas can thrive, despite naysayers.

5. Attention To Detail

Your ability to remember and process minute details without getting lost or overwhelmed gives you a distinct advantage when solving complex problems.

6. 3-Dimensional Thinking

Your ability to utilize 3-dimensional visioning gives you a unique perspective when designing and creating solutions.

7. Cutting Through The Smoke Screen

Your ability to recognize and speak the truth that is being “conveniently” ignored by others can be vital to the success of a project or endeavor.

8. Logical Decision Making

Your ability to make logical and rational decisions and stick to your course of action without being swayed by impulse or emotional reactions allows you to navigate successfully through difficult situations without being pulled off-course.

THESE TRAITS CAN BE USED TO DEVELOP INVALUABLE LEADERSHIP AND ENTREPRENEURIAL SKILLS

Copyright © 2007 by Kristina Elaine. All rights reserved.
Via Alyson Bradley – Aspergers Parallel Planet